e-Poster Presentation Clinical Oncology Society of Australia Annual Scientific Meeting 2020

Title: Finding my way-advanced: usability testing of a self-guided web-based psychosocial program for women with metastatic breast cancer. (#376)

Lisa Beatty 1 2 , Emma Kemp 1 , Phyllis Butow 3 , Afaf Girgis 4 , Jane Turner 5 , Penelope Schofield 6 , Nick Hulbert-Williams 7 , Billingsley Kaambwa 1 , Bogda Koczwara 1 2
  1. Flinders University, Adelaide, SA, Australia
  2. Medical Oncology, Flinders Medical Centre, Adelaide, SA, Australia
  3. Sydney University, Sydney, NSW
  4. University of NSW, Sydney, NSW
  5. University of Queensland, Brisbane, QLD
  6. Swinburne University of Technology, Melbourne, VIC
  7. University of Chester, Chester, United Kingdom

Aims: While digital psycho-oncology interventions are increasing in use, few have targeted the needs of patients with advanced disease. To overcome this gap, we commenced an iterative co-design process, adapting our evidence-based Finding My Way program to meet the needs of women with metastatic breast cancer (MBC). This process has resulted in a 6-module self-guided CBT-based prototype, Finding My Way-Advanced. The aim of the present study was to usability test this prototype.

Methods: Cognitive (i.e., ‘think-aloud’) interviews were conducted with women living with MBC. Participants attended an interview where they accessed up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data was analysed thematically.

Results: Participants (n=8) were aged 65.3 years (47-76), with most (n=5) partnered, retired (n=6), post-secondary school educated (n=6), with non-dependent children (n=7).  Each module was reviewed by 2-3 participants. Positive feedback was received regarding: (a) video content, particularly the relevant educational information, and representative age range of featured women; (b) the language: clear layout, understandable, and positive; (c) ease of navigation, once orientated to the program; (d) time/convenience; and (d) the normalising / validating nature of the program. Issues to be addressed included: (a) the layout was not intuitive at times, which confused users; (b) ‘scrolling’ issues, resulting in key content sometimes being missed, and (c) select worksheets not being intuitive. 

Conclusions: While usability testing overall yielded positive feedback, the process highlighted the importance of involving end-users in the co-design process, as a number of pragmatic issues were identified that have now been addressed prior to commencing an RCT (currently in progress).